Plate Nº 14 · recorded October 1, 2026

Neuroscience & MindReported finding

Somali Community Workshops Show How to Open Brain Research

A Sheffield study collected usable EEG and fNIRS brain data inside a Somali community center, mapping the barriers that keep minoritized groups out of neuroscience research.

By Nathan Brooks3 min read698 words

In brief

  1. Thirty Somali community members in Sheffield took part in workshops; ten completed optional EEG and fNIRS recordings at the Israac community center between November 2024 and February 2025.
  2. Community-collected fNIRS signal quality showed no significant difference from laboratory data (p = 0.68); EEG retained 70% of usable segments versus 84% in the lab, a difference just short of significance (p = 0.053).
  3. Only 1.6% of over 8,000 participants in neuroscience clinical trials reviewed across 47 countries (Feb 2016–Feb 2021) identified as Black; the UK Biobank imaging cohort is over 95% White.
  4. Barriers identified included socioeconomic constraints, cultural and religious requirements such as gender-matched researchers, low awareness, and mistrust rooted in historical research abuses.
  5. The team built a 3D-printed EEG electrode prototype adapted for African-textured hair in response to participant feedback about comfort and setup time.
Fostering inclusive participation in non-invasive neurotechnology research: a community-based study with an underreprese
Plate Nº 14Fostering inclusive participation in non-invasive neurotechnology research: a community-based study with an underreprese — AI-generated

Brain imaging equipment does not have to live in a laboratory. That is the central finding of a new study from the University of Sheffield, in which researchers collected usable brain data from members of the city's Somali community inside a familiar local venue — the Israac Somali Community Association center.

The study, published in Frontiers in Human Neuroscience on 29 July 2026, is described by its authors as the first UK effort to combine community-led workshops, on-site brain recording, and brain-stimulation engagement within a Somali community. Thirty adults, equally split between men and women, took part in workshops, focus groups, and interviews between November 2024 and February 2025. Ten of them volunteered for optional recording sessions using two non-invasive techniques: EEG, which measures the brain's electrical activity through electrodes on the scalp, and fNIRS, which tracks blood-flow changes with near-infrared light.

The backdrop is stark. Black African communities remain critically underrepresented in neurotechnology research. The UK Biobank imaging cohort is over 95% White, and a review of neuroscience clinical trials across 47 countries between 2016 and 2021 found that only 1.6% of more than 8,000 participants identified as Black. The consequences are practical as well as ethical: devices designed and tested on narrow user groups can fit poorly, record worse signals, and earn less trust among everyone else.

Why participation stalls

The team identified four broad barrier domains: structural and socioeconomic constraints, cultural and religious requirements, limited awareness and misconceptions, and gaps in trust and accountability.

Language was a recurring obstacle, and interpreters proved essential rather than optional. Scheduling mattered too — sessions were arranged to avoid school runs and the fasting month, and breaks allowed for prayer. Women stressed that gender-matched researchers and privacy during cap fitting, which can require removing a hijab, were preconditions for taking part. "I would only feel comfortable if it was a female researcher," one participant said. Some male participants later reported similar discomfort with physical contact from female researchers, prompting the team to recommend gender matching for everyone.

Mistrust ran deep, rooted in historical mistreatment of minoritized groups in research. "I did not want to be approached by researchers as a 'guinea pig,'" one participant said. Others questioned who funded the work and how their data would be used. The fear of the unknown was also concrete: several participants initially asked whether the devices could "see my thoughts" or "affect my brain." After trying the equipment, all ten imaging participants gave the maximum safety rating. As one put it, "When I saw how it was done and that nothing bad happened, I felt more relaxed about trying it myself."

Does the data hold up?

Technically, the results are encouraging but preliminary. A statistical comparison found no significant difference in fNIRS signal quality between community-collected data and laboratory recordings (p = 0.68). EEG data was somewhat noisier outside the lab: 70% of recording segments survived quality checks on average, compared with 84% in the laboratory, a small-to-moderate difference that fell just short of statistical significance (p = 0.053). The authors stress the small sample of ten and caution that the imaging component is exploratory rather than a statistically powered comparison.

The team also confronted hardware design head-on. EEG caps, which rely on gel and firm scalp contact, took longer to fit on participants with certain natural hairstyles and felt intrusive to at least one. In response, the researchers presented a 3D-printed EEG electrode prototype adapted for African-textured hair at the final workshop — a tangible sign, participants said, that their feedback was being acted on.

A template, not a panacea

The study has clear limits: a small, self-selected imaging subgroup, cohorts that were not demographically matched, and a fixed EEG artifact-rejection threshold. The authors call for larger, matched studies to confirm the findings.

Still, the pattern is consistent. Participants who had never encountered brain research said the workshops helped them "break the wall" of skepticism among their peers. One woman joined the imaging sessions only after hearing a friend describe them as safe — a reminder that trust in research often travels through people, not flyers.

via pubmed.ncbi.nlm.nih.gov (Original)

Filed under

  • eeg
  • fnirs
  • brain-imaging
  • diversity-in-research
  • community-engagement
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Market editor covering consumer brands and retail at SciBeat.

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